tag:blogger.com,1999:blog-1842616166354863334.post2856485764572589144..comments2023-10-09T06:10:04.542-04:00Comments on Taylo 2 Babies: And good luck with that!Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-1842616166354863334.post-36289706576861662262008-12-11T23:42:00.000-05:002008-12-11T23:42:00.000-05:00Please email me if you want and I'll tell you all ...Please email me if you want and I'll tell you all about the things we've tried with Sadie. It sound like Evan could have a fungal infection like sadie did. And the upper GI series is NO BIG DEAL I don't know why the doctor said it was not worth it. You need to push for that. But again, email me, cause you need support. This is so frustrating and I'm here with you!BabyonBoredhttps://www.blogger.com/profile/05988664515214410933noreply@blogger.comtag:blogger.com,1999:blog-1842616166354863334.post-8005422060222739512008-12-01T21:34:00.000-05:002008-12-01T21:34:00.000-05:00I know what you are going through. I've been there...I know what you are going through. I've been there and sadly, my twins ended up on feeding tubes at 7 months old (4 adjusted). It got that bad. They are 18 months old and with the feeding tubes, their weights are wonderful, but eating orally is a HUGE issue still. We are still on purees and bottles - small amounts. The reflux reeked havoc with their gag reflexes so textured foods are out of the question (gag/puke ALL the time). It is such a loooong battle. I hoped when they got bigger/older it'd get better, but it hasn't really. Has the GI or pedi ever recommended a feeding tube to you if the failure to thrive continues? It sounds scary, but they are super easy and you can rest easy that your little ones are getting the nutrition they so badly need in these early months, especially being preemies. Lack of adequate nutrition leads to developmental delays and the like. That's what happened to my little ones as well as failure to thrive overall. Once we got g-tubes, their development took off! It was amazing :)<BR/><BR/>Good luck - You are in my thoughts!!Kristenhttps://www.blogger.com/profile/03108569992517366402noreply@blogger.comtag:blogger.com,1999:blog-1842616166354863334.post-30799464950101498162008-11-28T17:45:00.000-05:002008-11-28T17:45:00.000-05:00I'm really sorry you have to deal with this. I hop...I'm really sorry you have to deal with this. I hope your pedi can help. ((HUGS))Valeriehttps://www.blogger.com/profile/12739059096376444308noreply@blogger.comtag:blogger.com,1999:blog-1842616166354863334.post-65363036217932589512008-11-26T11:10:00.000-05:002008-11-26T11:10:00.000-05:00Oh my gosh, Laura!! When will this end? I hope y...Oh my gosh, Laura!! When will this end? I hope your pedi can give you another avenue to try. I am praying for you and your family. How frustrating for you. I wish there was something I could do to help. ((hugs))<BR/>~SaraSarahttps://www.blogger.com/profile/18396653040393467188noreply@blogger.comtag:blogger.com,1999:blog-1842616166354863334.post-545500140993347232008-11-26T10:32:00.000-05:002008-11-26T10:32:00.000-05:00I am so sorry that you are having to fight so hard...I am so sorry that you are having to fight so hard....you are in my thoughts and prayers.bloghttps://www.blogger.com/profile/17329085573864699771noreply@blogger.comtag:blogger.com,1999:blog-1842616166354863334.post-85264682397398127832008-11-26T06:00:00.000-05:002008-11-26T06:00:00.000-05:00Wow.. that's..... FRUSTRATING. Honestly, Robbie is...Wow.. that's..... FRUSTRATING. <BR/><BR/>Honestly, Robbie is the exact same way. He doesn't spit up very much at all. (It's vastly improved with the prevacid) but the pain is CLEARLY there. <BR/>My pedi and our pediatric GI specialist both agree it's definitely reflux. <BR/><BR/>Right now, we're chasing him with meds. The prevacid and carefate do help, but it seems like as soon as he grows even an ounce or two, they stop working. So we're to the point of adjusting his meds every week if we have to. <BR/>I bought a baby scale for home to keep up with him. <BR/><BR/>Have you tries experimenting with different bottles/nipples at all? <BR/>That's the ONLY thing that seems to help Robbie eat more. Sometimes I even change nipples mid-feed. <BR/>We'll start with a Dr. Brown's Level 2, and switch to a playtex drop-ins fast flow when he gets wimpy. <BR/><BR/>We are also struggling with the extended time feedings. <BR/>Right now, what generally happens is that he's starving.. he eats an ounce... then refuses. We take a break, (30-45 minutes) change nipples and try again. Sometimes I get another ounce, sometimes I can get an ounce and a half. <BR/>Sometimes it just doesn't work. <BR/>In the end, I just try really hard not to fight with him becaues I feel like I'm burning more of his calories fighting me than he's eating. <BR/><BR/>I wish I knew the answer. I really do. I keep hearing he'll grow out of it.. I want to know WHEN.Joyhttps://www.blogger.com/profile/04150585209390355119noreply@blogger.comtag:blogger.com,1999:blog-1842616166354863334.post-80733751829827165512008-11-26T05:25:00.000-05:002008-11-26T05:25:00.000-05:00I am so sorry you guys didn't get the relief you h...I am so sorry you guys didn't get the relief you hoped for. It does seem that there has to be something they can do. I cannot imagine that your situation is unique.<BR/><BR/>Here's hoping solid foods will make a big difference!!Blue Moon Mamahttps://www.blogger.com/profile/18249669418804691079noreply@blogger.com