tag:blogger.com,1999:blog-18426161663548633342024-03-06T00:23:38.676-05:00Taylo 2 BabiesLaurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.comBlogger266125tag:blogger.com,1999:blog-1842616166354863334.post-1783703555541956482010-12-16T21:11:00.000-05:002010-12-16T21:11:53.292-05:00Milestone AcheivedTonight marks the very first night in almost two years that I have put Cameron to bed without being connected to a feeding pump. I am so very pleased about this. And even though it wasn't the BEST eating day, he did end it well by drinking 7 oz of whole milk with Carnation Instant Breakfast mixed in for some extra calories. <br />
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This may be my only update for a few days. My laptop is busted beyond repair and my replacement is on its way. I can post from my phone but it's a pain, and to post from my husband's computer is like putting someone else's shoes on... Just weird. Obviously I have more info about the boys and their progress to write about, so bear with me and I'll post as soon as I can.Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com6tag:blogger.com,1999:blog-1842616166354863334.post-58811803803833325552010-12-13T20:55:00.001-05:002010-12-13T20:56:13.540-05:00What do we want? When do we want it?What does Cameron want? FOOD! And when does he want it? NOW!<br />
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I really need to up my cooking game. It's not enough to make kid friendly foods, I now have to make them faster and with more variety. And ALL of it has to be high calorie, which is a real problem because even though he's eating so well there's lots and lots of leftovers. And I swear his grilled cheese that is made with real butter on both sides and extra butter in the pan, mayo on the inside and muenster cheese and a slice of ham tastes far better than my own low calorie version. I might as well make one for each of us right? This will be the year that I gain back all 70lbs of pregnancy weight I lost two years ago on a dairy/lactose free diet. *sigh*<br />
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What does Cameron eat? Here's the list:<br />
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Ham steak<br />
Buttered noodles (prefers rotelle shaped pasta)<br />
Alfredo sauce on curly shapped noodles<br />
Macaroni & Cheese (both name brand and homemade)<br />
Ravioli (small size, only cheese and spinach for now, working on meat)<br />
Rice with flavoring (ie. chicken & broccoli rice, cheesy rice, fried rice)<br />
Crunchy BBQ Ranch burrito from California Tortilla (no lettuce because it's cut in long shredded strips, no beans because Mommy doesn't like them)<br />
Chicken nuggets (prefers the Tyson dino shaped nuggets but will eat any kind as long as they are soft)<br />
Sloppy Joe sandwiches (smoosh the bread flat and cut into small bite sized squares about thumb size) <br />
<a href="http://www.wegmans.com/webapp/wcs/stores/servlet/ProductDisplay?langId=-1&storeId=10052&catalogId=10002&productId=708349">Artichoke Flan</a> from Wegman's (Mommy loves this too.)<br />
Cheese pizza<br />
Mini quiches<br />
Mini pancakes with syrup and butter<br />
French fries<br />
Sweet potato fries<br />
Potato pancakes with veggies<br />
Veggie sticks and disks (he's not discriminate against shape)<br />
Cheese puffs and Smart Puffs<br />
Skinny pretzel sticks (aka. kretzels)<br />
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Stove Top Stuffing (He was rolling his eyes back in his head in ecstasy tonight when he tried it.)<br />
Steamed carrot slices<br />
Steamed green beans<br />
Steamed broccoli<br />
Mild cheddar cheese<br />
Some kind of white cheese at a birthday party, trying to figure out what it was<br />
Diced peaches<br />
Mandarin oranges in syrup<br />
Diced pears (but he's not crazy about them)<br />
Grapes<br />
Raisins<br />
Apple (must be cut up in small chunks without skin)<br />
Banana<br />
Kix cereal<br />
Cocoa Pebbles cereal (must have what Daddy is having)<br />
Cheerios<br />
Nilla Wafers<br />
Fig Neutons<br />
Teddy Grahams (honey only)<br />
Goldfish crackers<br />
Ritz Crackers<br />
Gerber freeze dried apple, banana, strawberry<br />
Gerber fruit twist snacks (these are a fantastic chewing exercise for kids)<br />
Cupcakes<br />
Birthday cake<br />
Chocolate chip cookies (but only the soft kind)<br />
Brownies (no nuts)<br />
Baked apples in cinamon<br />
Yogurt<br />
Some Greek yogurts<br />
Scrambled egg with butter, heavy whipping creme and cheese<br />
Toast with butter and sometimes with honey<br />
Grilled cheese<br />
Grilled diced ham & cheese (must be diced lunch meat because he can't pull the meat apart with his teeth yet)<br />
Chicken & Stars soup<br />
Entamen's Little Bite blueberry muffins<br />
Hot Dogs<br />
Vienna Sausages<br />
Whole milk<br />
Carnation Instant Breakfast<br />
Apple & Eve juice in Punch, Berry, or Apple flavors watered down half & half<br />
Water<br />
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I feel like I'm forgetting something on this list. And I'm thrilled at the diversity of the foods Cameron eats too, I owe that to the wonderful conditioning that our feeding clinic at Mt. Washington has helped us achieve. Now I'm in constant search for some new great foods to try with him that are simple and quick to make but have lots of bang for our buck in calories. It's a bonus if it's a food I can easily make fresh in small quantities because I end up eating leftovers or throwing much of it out because he can't eat it all and Evan refuses to touch food to his teeth.<br />
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What are your toddler's favorite foods?Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com3tag:blogger.com,1999:blog-1842616166354863334.post-36867702617766479332010-12-10T20:23:00.000-05:002010-12-10T20:23:10.368-05:00Santa Came to TownEvery year Santa comes to town for a pre-Christmas tour. He hitches a ride on the back of an enormous red fire truck and he and all his volunteer fire department buddies drive through the neighborhood. They have flashing lights, horns, sirens and candy canes galore. And most importantly they have Santa lit up with a big spotlight, so even the tiniest Who in Whoville can't miss him from the cozyness of their front door. It's a toss up for which is cooler when you are a two year old with a penchant for fire engines or any vehicle with flashing lights and sirens. I hope that Santa doesn't mind that this year he was a bit overshadowed by his mode of transportation.<br />
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I mean, the Man in Red is awesome. But Cameron and Evan don't really understand who he is. He's just a very nice guy with a big white beard, wearing Cameron's second favorite color (the first is pink), and he has a funny laugh that Evan likes. They don't know exactly who he is or what he does. They don't get who the Elf on the Shelf is despite the fact that we keep reading his story to them. And they don't even really understand what presents are. But they know what a fire truck is and boy is it "super cool".<br />
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Mr. Claus stopped right in front of our house tonight. Lights a flashing, sirens full steam. You would have thought this might freak the boys out to be so close to all this commotion. Evan was speechless, jaw slack and eyes big as saucers. He pointed and quietly mouthed in a soft little voice uninteligable over the noise of the trucks, "Nee-nahs! Nee-nahs!" (Nee-nah is what a fire truck says, so that's what the boys call them even though they know they are called fire trucks.) Cameron was yammering away, "Look Mommy! Look Mommy! You see the fire trucks? You see the am-beh-lance? Hi Santa on fire truck! Hi fire truck! I love nee-nah! Look at the nee-nah Mommy!" The volunteer fire fighters would jump off the truck and run to each family in their yard and hand out candy canes. We gave them our donations of non-perishable foods for their food drive too. Then we watched them slowly drive down the street. Thankfully it was chilly, but not cold and not windy at all so we were able to stand in our yard to watch as the trucks left our street entirely.<br />
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When it became evident that the trucks were leaving us behind and not coming back Evan melted down with some hysterical crying. He bawled in Drew's arms, then when set down on the floor of the playroom he folded himself over crying more. Eventually he settled down into a very overtired melancholy mood, not saying too much, but I know he was thinking about the experience.<br />
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For an hour after Santa and his caravan of flashing vehicles made their way out of sight Cameron was still going on, and on, and on, and on about the Nee-nahs. He pulled out his favorite toy, the Fisher Price Little People fire truck, the fire man and a king from another Little People's set and reenacted what he saw and heard many times over. <br />
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I'm already enjoying this holiday season through their eyes all over again. When they are this little every year is a whole new experience. I'm excited to see what they think of the Christmas tree when we finally put it up. And hopefully they will have as pleasant an experience when they finally get to meet Santa up close again this year. Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com0tag:blogger.com,1999:blog-1842616166354863334.post-30189852423401198172010-12-07T14:22:00.000-05:002010-12-07T14:22:46.147-05:00How Things Are Said and DoneWhen something is upside down, be it a kid, a dog, or an inanimate object it is always referred to as "ups-sid down baby".<br />
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When someone falls, or pretends to fall, they ask me "Are you okay?" over and over and over and over until I repeat the question back. Often our toys have great crashes and the boys ask them this question until they are righted and doing whatever toys are made to do.<br />
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Telephone calls are always important and urgent. "Hello? Yesth? Okay. Bye." If it's Evan then the word hello is pronounced with a French accent, "Ahllo?" Sometimes it's Elmo or Poppop calling. Occasionally Granny calls with urgent news, to which she gets hung up on promptly lest the phone self destruct in 5 seconds.<br />
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Both boys can say their full alphabet with occasional help. Evan can count to 13 and Cameron to 11. And they can count backwards from 5. When counting down you must always say "Bwast Off!"<br />
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Cameron: "Oh boy! I can't wait."<br />
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Cameron: "Oh, Cah-men drive de car? Nooooo? Oh, okay, I'll try." <br />
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Cameron: "Mommy, get de telephone? Oh-kaaaay, Cah-men get de telephone." This is a diversionary tactic used during meals or nap time.<br />
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Cameron knows to say "Oh-kay, see you latter Cameron. Bye-bye, hag (have) a nice day. See you soon, Cameron." when he's leaving or the person visiting is leaving us. And what he means is that you are to say these things to him, and he will repeat the words over and over until you say them.<br />
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Every morning Cameron wakes up and tells me something unintelligible that ALWAYS involves a helicopter. I have no idea what he's telling me, but he always follows his discussion with "Mommy, you see a hec-a-topter?"<br />
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Evan: "Ah yooh oh-kay?" is said whenever he perceives himself to be hurt, roughed up, or upset in any way. Usually said at the same time as he folds himself over in half with forehead to feet or floor, face pouting.<br />
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Evan: Tackling my legs from the side or behind, "Aw, I wuv yoo."<br />
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Evan now calls himself Ennan or Eh-than. It seems both boys refer to themselves in the third person. <br />
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This week the boys finally have accepted the fact that occasionally they have to hold hands, and that it can be fun. It started with Evan trying to get Cameron to start a game of chase. He grabs Cameron's hand and for a few seconds they walk side by side holding hands. It makes my heart melt to see it, even if it's nano-brief. And then the running and squealing begins. Yesterday during a playdate with some other boys we played Ring Around The Rosie. All the boys in the group are delayed in some way, the unanimous common delays of the group are language and sensory issues. At this age kids will parallel play, which is playing side by side or near each other but not interacting directly with one another. To break this barrier you have to get them to do physical things, so playing Ring Around the Rosie is perfect because they have to hold another person's hand, they have to understand that there are rules to the game (hold hands, spin as a group in a circle, let go at a designated point, fall down), and that it's fun and repetitive for ongoing play. But to get sensory adverse kids to hold hands is difficult to put it mildly. But for the first time, they finally got the concept that it's okay to hold hands. This is a good sign that we are moving toward being stroller free. If they can hold hands, then it's slightly less likely that I will have to run in two different directions at the same time. Mommy is looking forward to that day.<br />
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The boys new favorite thing to do is play chase with each other. No words are involved, though if there are any it's "I'm gonna git you." Mostly it's Evan grabbing Cameron by the collar or hand and pulling him until Cameron knows that he's supposed to chase his brother, then the shrieks and peals of laughter follow. And it usually ends up with someone walking into a wall or door or falling on the floor, and of course the tears. After a minute of "Are yoo okay?" they are back at it going through the kitchen and around the living room and back through the kitchen over and over and over.Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com1tag:blogger.com,1999:blog-1842616166354863334.post-39831980948805744532010-11-29T23:03:00.003-05:002010-11-29T23:13:26.131-05:00Video Messages from Santa<div class="separator" style="clear: both; text-align: center;"><a href="http://www.tomhortonstalent.com/07-26-03-001-400b-284px.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="http://www.tomhortonstalent.com/07-26-03-001-400b-284px.jpg" width="244" /></a></div><div style="text-align: center;"><span style="font-size: xx-small;">Image courtesy of tomhortonstalent.com</span></div><br />
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Video message directly from Santa to <span style="font-size: large;"><b>Cameron</b></span>: <br />
<b><a href="http://www.portablenorthpole.tv/watch/ylXX_-srymQKVSXJe7FXVg">http://www.portablenorthpole.tv/watch/ylXX_-srymQKVSXJe7FXVg</a></b><br />
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Video message directly from Santa to <span style="font-size: large;"><b>Evan</b></span>:<br />
<b><a href="http://www.portablenorthpole.tv/watch/4XMkTkOu8ecmanzsb4_4ow">http://www.portablenorthpole.tv/watch/4XMkTkOu8ecmanzsb4_4ow</a></b><br />
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*Please note, Santa is VERY clear about his expectations for the boys this year. Specifically Cameron is to be sure to eat all his veggies, and Evan should not be afraid to try new foods. I know they can do it and that Santa and Daddy and I will be super proud of the boys as always. And to make sure that Evan and Cameron follow through with doing as Santa has asked, a special Elf representative by the name of Deeda will be present at all times to observe and give regular and factual progress reports to jolly old St. Nick.Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com1tag:blogger.com,1999:blog-1842616166354863334.post-42697702837977744342010-11-29T22:59:00.000-05:002010-11-29T22:59:16.682-05:00Happy Belated ThanksgivingWe have so much to be thankful this year. Most importantly that the boys are eating. In whatever way they are comfortable, Cameron and Evan are eating. Sometimes it's great, sometimes it's not so great, but they do eat. And I could not be happier about this.Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com0tag:blogger.com,1999:blog-1842616166354863334.post-59327379880641048812010-11-17T00:12:00.000-05:002010-11-17T00:12:49.359-05:00Today Is National Prematurity Awareness Day<div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhKMEcs0vc86mjfmTHhY8dpPakd-eUgJ5KO_FzOqRFXogBDRelcP2vM0ey57NK1Dk-E66LftwviNn_1uV1Jc3beQxbACKdMe1Dke5DdCidn8yGX9Ze8RaX1cpYNWOpgiiZ-Jy6tgq5v4fM/s1600/Mom+at+26+weeks.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhKMEcs0vc86mjfmTHhY8dpPakd-eUgJ5KO_FzOqRFXogBDRelcP2vM0ey57NK1Dk-E66LftwviNn_1uV1Jc3beQxbACKdMe1Dke5DdCidn8yGX9Ze8RaX1cpYNWOpgiiZ-Jy6tgq5v4fM/s320/Mom+at+26+weeks.jpg" width="320" /></a></div>This is me on March 15, 2008. I was 26 weeks and 5 days pregnant with twins. I was just barely in my third trimester. I was not nearly as big as I should have been. I was just told not one hour prior to this photo being taken that I would be admitted to the hospital for 24 hour monitoring for the duration of the pregnancy. This is my only picture of me pregnant, I wish I had taken so many more.<br />
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Do I look scared to you? No? Not even a little? Because I was terrified. <br />
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And really the scared that I was was just the tip of the ice berg that had been building up and up and up and up from the moment we learned that we were having twins and that one of them was struggling with severe Intra Uterine Growth Restriction (IUGR) and might not make it. And that his brother's condition was somewhat much better even though he too had significant IUGR but was absolutely certain to be high risk due to risks from prematurity. That we had to chose to risk one to save the other or possibly risk losing both babies. We counted the days, we were told to prepare as much as we could ahead of time.<br />
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I did the best I could to do as much as I could with preparing the nursery, trying to figure out the basic items we'd need for twins so that things were ready before I couldn't do them anymore. How I loved being pregnant. Even with the constant threat of losing one or both boys, the knowledge that we were likely to have preemies, I felt great. It was just starting to feel real, just starting to feel huge and really full. It was so wonderful. The lava lamp bubbles I'd been feeling were now pretty solid actual kicks, but not strong enough that anyone touching my belly could feel. I was not scared of having twins by this point. I was terrified, and more terrified that they would not be healthy, not live.<br />
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Fifteen days later my amazing doctor asked me, "Are you ready to become a Mom? Because you need to deliver in the next forty-five minutes." Become a mother of twins eleven weeks too soon.<br />
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And forty-five minutes later I delivered Cameron Andrew weighing 2lbs 15oz. I got to hear him cry two teeny tiny little squeaks. They had warned me I might not hear anything at all so we were instantly filled with pure joy. My husband got to take this one picture and I could see Cameron, just barely, while laying on the operating table before they whisked him away.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjBw9087aY8JmqbpjeqdiC5PowNy9LlBoeH3EUhERH9aoXrUMvKcfRBErITtnZppEcOm0zFC2OBfPz34A-6Gbc1pTtPAggyruNlCY57TZ4jKP9K4q8Z13TXoOTn3-AFcXFzz6KJ4g1Tce8/s1600/Cameron+to+the+NICU.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjBw9087aY8JmqbpjeqdiC5PowNy9LlBoeH3EUhERH9aoXrUMvKcfRBErITtnZppEcOm0zFC2OBfPz34A-6Gbc1pTtPAggyruNlCY57TZ4jKP9K4q8Z13TXoOTn3-AFcXFzz6KJ4g1Tce8/s320/Cameron+to+the+NICU.jpg" width="320" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="http://i30.tinypic.com/sqja50.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://i30.tinypic.com/sqja50.jpg" /></a></div><br />
And five minutes later, after much difficulty trying to reach and pull him out because of his size and positioning, Evan Alexander was born weighing 1lb 7oz. I did not hear him cry. I did not know if he was even alive for what seemed like several minutes. He had gone into full reversal of blood flow in utero and his heart was in distress. They rushed him past me for the quickest peek before rushing him to the NICU. There was no chance to get a picture of him, I did not see much but a blur of a little bitty pink forehead and lots of tape and tubes and wires zoom past me.<br />
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I finally was able to see the boys after recovery four hours later. I could not touch them for two more days. And when I could touch them I could only lay my finger tips on them gently because their skin was so thin it could bruise and tear. I was finally able to hold Cameron two long days later and Evan three even longer days later though it was only for 15minutes. <br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjb8vzyajaEP5ok-JCRsD_Yx5kHeh8TzCNCpYBWqtuCjJazo18VvPm4h7tantWNXCsv9e1ouhlTp560dekngtMu9yC-M2Ru6epBuONE5yx8HILjA6xgd2aMeD7Dx4Sv5gPVtgMMAU35Tc3a/s1600/Evan%2527s+1st+Kangaroo+Care.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjb8vzyajaEP5ok-JCRsD_Yx5kHeh8TzCNCpYBWqtuCjJazo18VvPm4h7tantWNXCsv9e1ouhlTp560dekngtMu9yC-M2Ru6epBuONE5yx8HILjA6xgd2aMeD7Dx4Sv5gPVtgMMAU35Tc3a/s320/Evan%2527s+1st+Kangaroo+Care.jpg" width="320" /></a></div><div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPqrhOGk6blHt8LOLLu8QNomY4sCGsbpkKvmXPvR_Ew5AnTaOvGzL8uY4AnRbkf1no5Yi2HYJKqFWcelZtEb2CXeyC7QLRd-nfKX-smaDtYuIO8UmRQhgPH6gL6guyUpNACX6ZHP9xbl9H/s1600/Picture+005.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPqrhOGk6blHt8LOLLu8QNomY4sCGsbpkKvmXPvR_Ew5AnTaOvGzL8uY4AnRbkf1no5Yi2HYJKqFWcelZtEb2CXeyC7QLRd-nfKX-smaDtYuIO8UmRQhgPH6gL6guyUpNACX6ZHP9xbl9H/s320/Picture+005.jpg" width="320" /></a></div><br />
They lived in the level III NICU at Anne Arundel Medical Center Hospital for 67 and 68 days. Cameron came home on oxygen and a heart and lung monitor and weighed only 6lbs 4oz. Evan came home with no tubes or wires but weighing only 3lbs 14oz. Do you know how horrible it is to have someone ask if that's a real baby in the car seat?<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEglJwjadFjKyIUNF0-w_pTP6w191j7ipD6DocUcqbnRVxJFydqtNx5QIc8WH5BC014rHgj6cDrXgBgkm5dQhEnGSjw0Y98BY0bFHhtUy4OOteZunsk9RVJ9Yt7WEji5KVjado-F2SBvkCA/s1600/IMG_3128.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEglJwjadFjKyIUNF0-w_pTP6w191j7ipD6DocUcqbnRVxJFydqtNx5QIc8WH5BC014rHgj6cDrXgBgkm5dQhEnGSjw0Y98BY0bFHhtUy4OOteZunsk9RVJ9Yt7WEji5KVjado-F2SBvkCA/s320/IMG_3128.jpg" width="320" /></a></div><br />
It is because of advances in medical technology today that I have my boys. It is because there are talented strong souls who have chosen to dedicate their lives, their profession to saving the lives of infants and mothers. It is because of our experience that I post today. Before becoming pregnant I did not know, I could not appreciate what the word "Preemie" meant. It was always just really tiny baby clothes. Not a face or a name. Just an extra small adorable baby. <br />
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But real preemies are so much more. They are fighters of the tiniest and strongest kind. My preemies have faced several serious staff infections, dozens and dozens of IV's and blood tests, eye exams that are like something out of an alien abduction science fiction movie, being kept from being held by their mother because they were too tiny, too fragile to be touched and held. They have been intubated and re-intubated, had their stomachs drained, fought off <a href="http://en.wikipedia.org/wiki/Necrotizing_enterocolitis"><i>Necrotizing enterocolitis</i> (<i>NEC</i>)</a>, fed TPN through an IV in their belly button instead of breastmilk by mouth. They've both stopped breathing and both have had their heart stop more than once because they were just too little to remember to breath and beat their little hearts with holes in them. They both continue to fight a wicked battle for growth with feeding tubes causing sensory issues and oral aversions and a vicious case of reflux. All of this due to their prematurity. And this is a pretty "easy" story compared to many of their preemie peers who've experienced and survived much harder trials.<br />
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Today they look nothing like what you imagine a "Preemie" looks like. They are catching up on all their developmental growth and abilities. They are eating better and better every day. And they are amazing fighters. But it would not have been this way if we didn't have the wonderful medical technology and trained professionals to give these children a chance at the fight.<br />
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So when you see a local business asking for donations to the <a href="http://www.marchofdimes.com/?src=pam2010ggl00">March of Dimes</a>, please know that the face of what they do is not a cute little preemie sized onsie. It's not a fat pudgy baby. It's not the card cut out in the shape of a balloon with a space for the clerk to write your name in black marker. It's not the itsy bitsy cute adorable micro preemie diapers that wouldn't fit a Cabbage Patch doll.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgxE1LF1U-5-Ss5NuNGRTFeNNiiuzzRlBwvfNkhYhMyTOpAStvp6DkbL7VqzNMobGuSmb9_vFKpnn8v9DSiK57v40BZUkZlBPpHl5hyVyrVq_fupcLnLH3-p4y-9bpvAdXhJ_xeGuV8MHY/s1600/IMG_2419.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgxE1LF1U-5-Ss5NuNGRTFeNNiiuzzRlBwvfNkhYhMyTOpAStvp6DkbL7VqzNMobGuSmb9_vFKpnn8v9DSiK57v40BZUkZlBPpHl5hyVyrVq_fupcLnLH3-p4y-9bpvAdXhJ_xeGuV8MHY/s320/IMG_2419.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">My hand, micro-preemie diaper, preemie diaper, size 3 diaper.</td></tr>
</tbody></table> It's the child and the families, the professionals and the specialized equipment who help them live and grow.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4n6dcqT7UhcpBs-cEaCvRO4rzD70bKWMqPbAANBqbNHvEoHo4FGtbqmhHuy8LG-3jDTp6xlk18txCOpnIC5EM2ahEb2m1qfaWgYyJ6uMWxU7fN5ILklRjXshYBAlTKB6uh93bQj2mw_k/s1600/IMG_2894.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4n6dcqT7UhcpBs-cEaCvRO4rzD70bKWMqPbAANBqbNHvEoHo4FGtbqmhHuy8LG-3jDTp6xlk18txCOpnIC5EM2ahEb2m1qfaWgYyJ6uMWxU7fN5ILklRjXshYBAlTKB6uh93bQj2mw_k/s320/IMG_2894.jpg" width="320" /></a></div><br />
November 17, 2010 is the national Prematurity Awareness Day. March of Dimes at CMU is inviting you to wear purple on this day to support all of those who were born premature, and to fight for the prevention of prematurity.<br />
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Every year, more than half a million babies are born prematurely in the United States. The rate of premature birth has risen by 30 percent since 1981.<br />
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Premature birth is the leading cause of newborn death worldwide. Even babies born just a few weeks too soon can face serious health challenges and are at risk of lifelong disabilities. Premature birth costs society more than $26 billion a year.<br />
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We need to fight. Because no baby should ever have to. Please consider a charitable donation of your time, your money, your ear, your mind, or your voice. Anything to help more babies around the world have the chances that my children were given would be appreciated. Thank you.Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com11tag:blogger.com,1999:blog-1842616166354863334.post-63224324778366928302010-11-16T20:09:00.001-05:002010-11-16T20:11:50.238-05:00That's The Very Last TimeThat post yesterday will be the very last time I ever mention that either Cameron or Evan have not puked in however many days it might be. Tonight just before bed while still messing around in the playroom Cameron started coughing and it continued into a vomit. All he had in his stomach was a little bit of undigested noodles and carrots and juice but it was still a puke and we're not exactly sure what caused it. He's had a runny nose today, some sneezing and coughing but nothing significant. No fever either, so I can only assume reflux or a random gag triggered by something that went volcanic. Either way, I'm not going to post when the boys have stopped puking ever again. Because every time I do, within 24 hours they puke. I've had enough puke, I'm so done with it. We are the masters at puking, there are very few people who've ever dealt with more puke than us and they all read this blog. For the record, you can just go ahead and assume that if we've removed the boys feeding tubes from their bellies that they don't reflux vomit any more. And we'll never count pukes again. M'kay?Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com1tag:blogger.com,1999:blog-1842616166354863334.post-19252913651644139932010-11-15T22:16:00.000-05:002010-11-15T22:16:07.992-05:00Insatiably SweetWonders never cease. Last week was our first week hiatus from taking the Periactin. We are supposed to do the Periactin four weeks and then take one week off so that their bodies don't build up too much of a tolerance to the medication. It was a true test to see if the medicine is really getting them over an eating hurdle. And I can officially say that for Cameron it has. It's a miracle drug and works exactly like it's supposed to do, though I know for many kids it does nothing for them.<br />
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As you might have read in my earlier post, during last week there was a significant drop in the amount of volume of puree foods and liquids Cameron was willing to tolerate, but his interest in eating real food actually increased. At Wegman's grocery store I got an egg and cheese and artichoke frittata (more of like an omelet than a frittata) and he ate 1/2 of that artichoke and all. He also saw a banana on the kitchen counter and asked for it. I gave him about a 2" whole, unmashed section of the banana and he ate it happily. Pretty much he's just been munching non-stop for a whole week.<br />
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And this weekend, oh this weekend.... The boy is a bottomless pit! Saturday we re-started our regiment of Periactin, but this time I only gave 2mls after breakfast around 9am. Within an hour he was demanding food. "Cameron, you hungry! Mommy, you hungry! Cameron eat breakfast? Cameron eat snack?" It's so beautiful to hear, even if it's repeated over and over and over and over in a increasingly faster and higher pitch. He now easily consumes one full cup of diced peaches in syrup, his new favorite snack, which he calls "Sweet" not peaches. He also eats about 1 cup of Veggie Sticks a day or more, up to 4 grapes cut in quarters at a sitting, a full serving of freeze dried apple chunks. And every meal he not only eats 1/4 of some kind of grilled cheese sandwich or 1 to 2 full Sweedish meatballs, he also eats a full 6oz of a stage 3 puree plus up to 4oz of whole milk. On Sunday I almost thought I was asleep and dreaming because in under 45minutes he consumed one FULL banana and demanded more. (I drew the line at one full banana. Don't want to freak his system out more than it already has been.) Then tonight he ate about 1 1/2 of meatballs, 1/2 serving of steamed green beans for which he demanded sight unseen until I put them on his plate, plus 5oz of milk and 5oz of a stage 3 puree.<br />
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I can not believe this kid is eating like a typical child. I am flabbergasted at the suddenness of the change in his eating. It is just plain WEIRD to be sitting at a meal with my husband feeding Evan and I don't have to do anything because Cameron is now self feeding everything but the purees. I blinked and POOF! He's eating! How did this <i>happen</i>??<br />
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For Evan, I think that if he were past the hurdle of touching food to his teeth, maybe if he were already nibbling foods on occasion, a good bit more interested in the food on MY plate, then I feel this medicine would definitely have him eating bigger bites and more quantity. But as it is, he's hungrier and more willing to eat what I make him take on the spoon, so he's eating 4oz of stage 2 foods pretty well and consistently. But he can not tolerate solids in his mouth beyond rolling one goldfish cracker around on his tongue until it's soggy and all the salt is gone. He will take a piece of steak or a meatball speared on the end of a fork and suck on it but he will not eat it or nibble. We play games to get him to touch food to his teeth, he enjoys the games and will play along but barely. He definitely knows that it makes us happy to have food touch his teeth because he tells us he's doing it, he shows us and looks at us seeking approval and encouragement, which we try to give in spades. He even tells us frequently, "Enan is eating." I just wish I could figure out a way to make him comfortable to bite into foods just the teeniest tiniest bit, a tweezer sized pinch like Cameron started out doing. Then I would know that he's on his way and we are not at a permanent stale mate. I have not given up, but it would be nice to see some improvement sooner rather than who knows when.<br />
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At least now I can put food in front of one kid and spoon feed another at the same time. If you have never tried to feed two resistant toddlers at the same time, even two healthy no problem eaters that need to be fed by you at the same time then let me assure you, it is <i>STRESSFUL</i>. We've been fighting this battle to get them to an acceptable weight and growth pattern, a healthy sleep pattern not interrupted by spontaneous vomit, a moderately normal approach to eating their entire lives. I don't even know what it's like to have a normal life with toddlers, without always having to worry about this weight gain or that amount of vomit every two to four hours twenty-four hours a day. To think that all of the sudden I have to actually come up with meal plans for Cameron so I always have foods for him to consume is just awesome and strange at the same time. I carry food on my person at all times for that instant that someone has an inkling that they want some food to munch on. I'm excited for the day that all of this clicks for Evan and he finds the pleasure and joy that Cameron has now found in food. All I need to do now for Cameron is teach him to take medicines by mouth, which will be tricky but definitely doable.<br />
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We have our follow up with the GI doctor in 4 weeks to review weight gain and decide if it is time to wean the boys off of all formula as well as reflux medication. I am hoping that Evan has a breakthrough coming and that we'll see great weight gain and that she'll cut his formula through the pump down to 150mls at night. But he's still puking maybe once a week at night, so I am unsure that he will be ready for that step as it really depends on his being reflux free.<br />
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I am however certain that at his rate, I can probably take Cameron off his 1 hour a night 150mls bolus feeding before we ever go to that appointment. And I'm certain that, because Cameron has not vomited at all in TWO MONTHS, I can begin to ween him off of his reflux medication, Prevacid, starting then too. Then once he's off the Prevacid we will ween him off of the Periactin hunger medication and he will be a completely typical 2 year old toddler. And then with enormous luck maybe we'll survive the winter without any illnesses that require we use the feeding tube for any reason, in which case we will remove his G tube completely. Just in time for his birthday.<br />
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Edit: Just after I finished typing this I heard Cameron's pump beeping that it was done for the night. When I went to go unplug him from the pump I discovered the poor thing snoring in a big puddle of his cold wet formula. The medicine port had popped open somehow, yet again, after we'd plugged him in and double checked that the medicine port was closed. So he didn't get all of his 150mls of formula tonight, I have no idea exactly how much he got. But he was a good sport about our having to strip him and his bed down and remake it all over and put new jammies. I will be so happy to see these feeding pumps go.<br />
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Here are some pictures from our week... <br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiePmprJDz6g-ZnsL4w3PU69sIjGEHpJQSuIrKd6LdnO6po__DorzZIIIB2TeYSO2zdjQjHUUt_N9fXZ6huvYE93GAdRltE7bfWx0C8n8pVwfC8IFAAnhF4PwikUsQ0Xt_bzsNPWEVei5A/s1600/DSCN0842.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiePmprJDz6g-ZnsL4w3PU69sIjGEHpJQSuIrKd6LdnO6po__DorzZIIIB2TeYSO2zdjQjHUUt_N9fXZ6huvYE93GAdRltE7bfWx0C8n8pVwfC8IFAAnhF4PwikUsQ0Xt_bzsNPWEVei5A/s320/DSCN0842.JPG" width="240" /></a></div> Chillin with cousin Lucy.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNnrQvOsCr0gYrEteC-Ayi8FU1H5560Nw4L84sC6j_11u3oTTYPeyMF8pWnlE4JT0Uhv1unNCWrQRHyxJFTVI0KxEW2d2o3dLL_N-G_xnBp_QNKFZKi9RWWw858Fk9RE_YhN67d-gX3L4/s1600/DSCN0890.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNnrQvOsCr0gYrEteC-Ayi8FU1H5560Nw4L84sC6j_11u3oTTYPeyMF8pWnlE4JT0Uhv1unNCWrQRHyxJFTVI0KxEW2d2o3dLL_N-G_xnBp_QNKFZKi9RWWw858Fk9RE_YhN67d-gX3L4/s320/DSCN0890.JPG" width="320" /></a></div> And cousin Timmy.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4nARSLF1XEQBMSHp4qVQJAQzPYU4x6mFshan-tEyGk7iNPm6Fg3Y0KeLbL2ULuQiX4FfidRomwYUPfIVMkjka-85La3-YTP9lRinAVskcxrDQ0EGDAzaocVsZwutp7HA1zrm055VMvx8/s1600/DSCN0892.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4nARSLF1XEQBMSHp4qVQJAQzPYU4x6mFshan-tEyGk7iNPm6Fg3Y0KeLbL2ULuQiX4FfidRomwYUPfIVMkjka-85La3-YTP9lRinAVskcxrDQ0EGDAzaocVsZwutp7HA1zrm055VMvx8/s320/DSCN0892.JPG" width="240" /></a></div> And cousin Dillan.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhi8AkEY9n23YidcLa3z0x-92apglt7lclrJbCYpZgrekF25oGwezjUAtfOa1avjWIlp2okGxbpnVC5uVzE8cDBes4N5T0ba3FNaw9AhUxIhf66YXAthvCDhRPhYQoksFhXSNDoUTcJnjQ/s1600/DSCN0981.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhi8AkEY9n23YidcLa3z0x-92apglt7lclrJbCYpZgrekF25oGwezjUAtfOa1avjWIlp2okGxbpnVC5uVzE8cDBes4N5T0ba3FNaw9AhUxIhf66YXAthvCDhRPhYQoksFhXSNDoUTcJnjQ/s320/DSCN0981.JPG" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj59IaDgT38lnfgVuIvTkT8pUzDQgBXZOrqVngDrzSbKtfluzgzBlbbeABdU-BCaOBS9OSiVnEafCAxoKSla56J6IgJWtJ_5NgPquO6ptLCj7mCvRMdij_xXHx5wSqRWdxM7kUf6QJGHnM/s1600/DSCN1010.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj59IaDgT38lnfgVuIvTkT8pUzDQgBXZOrqVngDrzSbKtfluzgzBlbbeABdU-BCaOBS9OSiVnEafCAxoKSla56J6IgJWtJ_5NgPquO6ptLCj7mCvRMdij_xXHx5wSqRWdxM7kUf6QJGHnM/s320/DSCN1010.JPG" width="240" /></a></div> You know that old saying? Some things....<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDBsm4ToYwuA_9DUY3JhhtKlOCawboB9VsagLMfB5CNqm4KVzYi12BUb2sBsoDsaumNtnU33HpVy-Kg5jMOIptTShN8Q_TKD2Eh3DtbUC9Uc7-hTHY3fsUKR604_MmSAqFjJ4Ib7jwtxc/s1600/DSCN1027.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDBsm4ToYwuA_9DUY3JhhtKlOCawboB9VsagLMfB5CNqm4KVzYi12BUb2sBsoDsaumNtnU33HpVy-Kg5jMOIptTShN8Q_TKD2Eh3DtbUC9Uc7-hTHY3fsUKR604_MmSAqFjJ4Ib7jwtxc/s320/DSCN1027.JPG" width="240" /></a></div> .... Never change. (Above: cousin Timmy, Evan in pillows, and Uncle Chris. Below: Uncle Mike at the same age as Evan and Drew, aka Daddy. Same house, same location in living room, slightly newer sofa.)<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi8hQgD57oT5-FauwgtqEFGxiXAQGN6iMtKf8EVsnV1u8ZpkCZCpsf5xAkXBMSMDJltpoMZ-T-jjyPpj_4zEiGPRYQh9ZPMC4s-G0I-Z3zZdWtJgumdAOJQAS0Yl9bRgyLTw_4iz8txiuE/s1600/Winter+1982+-+Mike+2+Andy+8.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="244" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi8hQgD57oT5-FauwgtqEFGxiXAQGN6iMtKf8EVsnV1u8ZpkCZCpsf5xAkXBMSMDJltpoMZ-T-jjyPpj_4zEiGPRYQh9ZPMC4s-G0I-Z3zZdWtJgumdAOJQAS0Yl9bRgyLTw_4iz8txiuE/s320/Winter+1982+-+Mike+2+Andy+8.jpg" width="320" /></a></div> Because we are superheros, we are practicing to fly like them too. <br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5828w48fubLG54Vr_YgFMWq6d5jq3xuC7sn8b70FWATDNHy81Ces94s3BtGW-bEGFsA_y3waNg9ReMGREQ5NhqVPElYWP1BUlezEXPzRvSMKitn8CkX9DJHteQqi_f2Ki0YzivD_UQ7I/s1600/DSCN1373.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5828w48fubLG54Vr_YgFMWq6d5jq3xuC7sn8b70FWATDNHy81Ces94s3BtGW-bEGFsA_y3waNg9ReMGREQ5NhqVPElYWP1BUlezEXPzRvSMKitn8CkX9DJHteQqi_f2Ki0YzivD_UQ7I/s320/DSCN1373.JPG" width="320" /></a></div>The boys love to tell me that we are Shape Searchers. They tell me when they see shapes. Evan pointed out the octagon (or as he calls it "ohk-a-gone") and the rectangle ("rek-angle") on our walk back from the playground. <br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoUeaaBnCpdDch2apVy5Y8fc_-E5tv9847c-qRrpQhXMjCIBNtNROZCHV0ddDPH8t7By2ybI-0mEgjy4pA3GzrShSOzm2sSDBjXO_IAinqS0qbCc6kBWG2Fd9bzXlF9JkgKCd2Rq2kv4U/s1600/DSCN1380.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoUeaaBnCpdDch2apVy5Y8fc_-E5tv9847c-qRrpQhXMjCIBNtNROZCHV0ddDPH8t7By2ybI-0mEgjy4pA3GzrShSOzm2sSDBjXO_IAinqS0qbCc6kBWG2Fd9bzXlF9JkgKCd2Rq2kv4U/s320/DSCN1380.JPG" width="320" /></a></div><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGMLA04WUZ4duo0EyHDAUMDWjZuHSrVM_XjLZ0SYzbYMzdwEkyp2FLVieuTyrhPJjIe9bwdeGh_Xh-XWBYVWwxd5mmTOb7yxW-PkbAa7UEUVg5NNO2FmUNExIENRTKNx3RpD18peYfkyg/s1600/DSCN1431.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGMLA04WUZ4duo0EyHDAUMDWjZuHSrVM_XjLZ0SYzbYMzdwEkyp2FLVieuTyrhPJjIe9bwdeGh_Xh-XWBYVWwxd5mmTOb7yxW-PkbAa7UEUVg5NNO2FmUNExIENRTKNx3RpD18peYfkyg/s320/DSCN1431.JPG" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzXyfFBMfRYetOXzOByhDO98CQ0CjZEyCWPoZGS9r0D18scvGkoZ3LJJFffK7Bt13UibkjVW29va1rO5nye2fNhXKVeIEPgkWRkYQdQORZNyKnURgAJYTNT8ZAJZzeA36qcu1sTa1uLaM/s1600/DSCN1433.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzXyfFBMfRYetOXzOByhDO98CQ0CjZEyCWPoZGS9r0D18scvGkoZ3LJJFffK7Bt13UibkjVW29va1rO5nye2fNhXKVeIEPgkWRkYQdQORZNyKnURgAJYTNT8ZAJZzeA36qcu1sTa1uLaM/s320/DSCN1433.JPG" width="240" /></a></div> This is as close as Evan will get to biting any solid food.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjM1i-24vJhxuQMo6rpmWog7JL2WQ30JdKKd088n3RspJXAIT9OXBq_kqhFuGhlAjZN5QuSfH3n8IZhdFrhZ_9hKjzEF8yaJo8G9GVMOlIYEwpYJW08YDx-mdHXqZtMK6-_zqaiKZ_-sno/s1600/DSCN1461.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjM1i-24vJhxuQMo6rpmWog7JL2WQ30JdKKd088n3RspJXAIT9OXBq_kqhFuGhlAjZN5QuSfH3n8IZhdFrhZ_9hKjzEF8yaJo8G9GVMOlIYEwpYJW08YDx-mdHXqZtMK6-_zqaiKZ_-sno/s320/DSCN1461.JPG" width="240" /></a></div> And this is probably one of my favorite pictures of Evan.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcPGjGkGgrGMD6r2Kd9ogZ6jEFZcJGlzdVN191Hvw3j85i6DxoTblEuz7PmzYetMSFdTurnthBrdutZZiYRr-iru_f8HG8uS-9QaPs9qu2DfOPncOiICBTOBT5zQnqXC2E5JpZKlpjo18/s1600/DSCN1463.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcPGjGkGgrGMD6r2Kd9ogZ6jEFZcJGlzdVN191Hvw3j85i6DxoTblEuz7PmzYetMSFdTurnthBrdutZZiYRr-iru_f8HG8uS-9QaPs9qu2DfOPncOiICBTOBT5zQnqXC2E5JpZKlpjo18/s320/DSCN1463.JPG" width="240" /></a></div> Cameron, do you like grilled cheese sandwiches? Yes Mommy!<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwhZ_BOmqvaD8jVEnf9k-axIG69NlW5Zzp3MPcKDzWFZUfOEcpWN22QdTxf2lCvGoM-rpnrVcAAL14oRLcYzRkP1P0dwOAdJejE3MXayC5fpR92HIhYAD1aPV1beagIxwbsb52rvXyl5E/s1600/DSCN1478.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwhZ_BOmqvaD8jVEnf9k-axIG69NlW5Zzp3MPcKDzWFZUfOEcpWN22QdTxf2lCvGoM-rpnrVcAAL14oRLcYzRkP1P0dwOAdJejE3MXayC5fpR92HIhYAD1aPV1beagIxwbsb52rvXyl5E/s320/DSCN1478.JPG" width="320" /></a></div> Chewie, sneaking in to the playroom for his afternoon siesta, which happens to be at the same time as the boys' nap.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgY5FZRrjjaBLIqvN7G4ZR-Y27eafJM9W4c_43fXN4QQKjSmXlVo3QGZzB9uoTErXvh2rNnqJwD36p5SSv4ehXwV8lP8tNb3EzYa5jJXudc-5IB9_FVdU9awKgiK6-bPID5YRJbHpSgAY4/s1600/DSCN1495.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgY5FZRrjjaBLIqvN7G4ZR-Y27eafJM9W4c_43fXN4QQKjSmXlVo3QGZzB9uoTErXvh2rNnqJwD36p5SSv4ehXwV8lP8tNb3EzYa5jJXudc-5IB9_FVdU9awKgiK6-bPID5YRJbHpSgAY4/s320/DSCN1495.JPG" width="320" /></a></div> Cameron is in the background shoving fists full of noodles in his mouth, while Evan is figuring out how to stab his meatball.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6UeaLU1McM2zubag4BLjecJzLixBabM_lSyjDh4y-zkW7oTONKHkvuCn6SsGxwygkmqT0aN1VuKXXsafIOPVQjN5H9eu0Z8bgMUK3jJmK0tbCm_Pm3JNJoBbZh9KBwY5cETy1QUCrFus/s1600/DSCN1549.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6UeaLU1McM2zubag4BLjecJzLixBabM_lSyjDh4y-zkW7oTONKHkvuCn6SsGxwygkmqT0aN1VuKXXsafIOPVQjN5H9eu0Z8bgMUK3jJmK0tbCm_Pm3JNJoBbZh9KBwY5cETy1QUCrFus/s320/DSCN1549.JPG" width="320" /></a></div> Uh, you really want me to eat this banana? (24hours later he ate a whole banana)<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilQhnGZbvMv_5dH8y8JKy-tBKaYesvJ6WpL6GJlrHsK07RP-KSfUjGsAd82qNDcKi1XpORglDx6JfnqVR6XiqctvJRmAy3KASo2Mc9K8hqjYaGkBZXcV2j6RWwhOyzI0FZnzzOmeDIQCA/s1600/DSCN7255.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilQhnGZbvMv_5dH8y8JKy-tBKaYesvJ6WpL6GJlrHsK07RP-KSfUjGsAd82qNDcKi1XpORglDx6JfnqVR6XiqctvJRmAy3KASo2Mc9K8hqjYaGkBZXcV2j6RWwhOyzI0FZnzzOmeDIQCA/s320/DSCN7255.JPG" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiPTPpVThgu9PqPCcHf9GqKqzMK-XCKLY1dtEFAY-Iw-HhMSYChSfV2AG2sZTT2Q0tdLjrIo1yWamU-k6Yn1iJOOWKpBLugBoa2j1m6Iysaa1UECa2MxY3Yyk-b1dbaaDPQOWSd9FoEjOQ/s1600/DSCN7298.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiPTPpVThgu9PqPCcHf9GqKqzMK-XCKLY1dtEFAY-Iw-HhMSYChSfV2AG2sZTT2Q0tdLjrIo1yWamU-k6Yn1iJOOWKpBLugBoa2j1m6Iysaa1UECa2MxY3Yyk-b1dbaaDPQOWSd9FoEjOQ/s320/DSCN7298.JPG" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1CqRzjLvQjQlyi7Vrd0Jd1womMXA9BuopeR3SIzrJouqX_OGO0hrko5faXK4q1-n0Gxv7a6bVVTEng7WMp28rcX_0d408U8kGvdUEBlz_cW5-cdaDpJsyOukaYBP4do2p5YVAap41Bpo/s1600/DSCN7301.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1CqRzjLvQjQlyi7Vrd0Jd1womMXA9BuopeR3SIzrJouqX_OGO0hrko5faXK4q1-n0Gxv7a6bVVTEng7WMp28rcX_0d408U8kGvdUEBlz_cW5-cdaDpJsyOukaYBP4do2p5YVAap41Bpo/s320/DSCN7301.JPG" width="240" /></a></div> Feeding a toddler should always be this simple. Cameron's first full cup of diced peaches.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixKY8z6eeilgu86aygkOWG8Kj0u0ZwPfrF5hLgbLRyXCoQis8GRvFtMOwK-ss9o7jjAljT3fQi3HTJUYnoIPSg7s3gw0H6jmsbKeIbOy9bcrTxTh4kj-UsCZlUM69IvPIQlUinlyTEc30/s1600/DSCN7339.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixKY8z6eeilgu86aygkOWG8Kj0u0ZwPfrF5hLgbLRyXCoQis8GRvFtMOwK-ss9o7jjAljT3fQi3HTJUYnoIPSg7s3gw0H6jmsbKeIbOy9bcrTxTh4kj-UsCZlUM69IvPIQlUinlyTEc30/s320/DSCN7339.JPG" width="240" /></a></div> Evan, who was not interested in the peaches decided to visit Chewie.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJddSGMxfP96GVfgsPthJhl5XbkHASkGBFXepfloJrOID-S-t1qC_mOP8gl0xn8g2hmuhF_AtiDMXVjw3vkutpZoL0FFHUq4yOCKLd6aWJYkRgvpS9q_0v5tgQbVb7sZhMl6o1DfQLDb0/s1600/DSCN7348.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJddSGMxfP96GVfgsPthJhl5XbkHASkGBFXepfloJrOID-S-t1qC_mOP8gl0xn8g2hmuhF_AtiDMXVjw3vkutpZoL0FFHUq4yOCKLd6aWJYkRgvpS9q_0v5tgQbVb7sZhMl6o1DfQLDb0/s320/DSCN7348.JPG" width="240" /></a></div> This is Evan watching Cameron eat his peaches.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh2YQRw_ItH8pzceX_AQbfFplSuLnlcJQPnNO8dGZzBnKLHV7pw8UTwafbnlCKASJb7eGb3_ESiRWbve4DOlbk4UcaJDuFCu0T_LX8P0eY3xChFIS_bSZkPQqkTsy7P2yk8sYgKcogXbVM/s1600/DSCN7379.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh2YQRw_ItH8pzceX_AQbfFplSuLnlcJQPnNO8dGZzBnKLHV7pw8UTwafbnlCKASJb7eGb3_ESiRWbve4DOlbk4UcaJDuFCu0T_LX8P0eY3xChFIS_bSZkPQqkTsy7P2yk8sYgKcogXbVM/s320/DSCN7379.JPG" width="320" /></a></div> And this is Cameron, finishing his peaches.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTCVX1yOjV-1GJ3nOTQ33FPgo9GQQeawcDCZSZ9L7QkwmghqT3En6unKZ9E0LPzYkuxePLsdZZegQo52uypUbD2_WhBSUIVZ9YFCEvogpnHbc_iYr3zz-nle1XA-dLAQww3nY6Mh1tBdw/s1600/DSCN7392.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTCVX1yOjV-1GJ3nOTQ33FPgo9GQQeawcDCZSZ9L7QkwmghqT3En6unKZ9E0LPzYkuxePLsdZZegQo52uypUbD2_WhBSUIVZ9YFCEvogpnHbc_iYr3zz-nle1XA-dLAQww3nY6Mh1tBdw/s320/DSCN7392.JPG" width="320" /></a></div> The boys love to stop and smell the flowers, literally. Sometimes we accidentally come away with a petal stuck to our lip or maybe leave behind a crushed bloom or two or four. But we do love flowers.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhz0ZN2w9f76gVrIiCy-uvQhBjk02-i6abQGvIPJ9-PtQuUpBv4efxiri66b_qpoELgYXNEzkUsChDpyEWIic5ERIuhAKrEfEbMI-new-sfoM1nebaFZ50bRubvFsXhyTvdcWnlnCGtYHY/s1600/DSCN7411.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhz0ZN2w9f76gVrIiCy-uvQhBjk02-i6abQGvIPJ9-PtQuUpBv4efxiri66b_qpoELgYXNEzkUsChDpyEWIic5ERIuhAKrEfEbMI-new-sfoM1nebaFZ50bRubvFsXhyTvdcWnlnCGtYHY/s320/DSCN7411.JPG" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg9XuvL7uuByJKZKQyaGClNWYmXoaSOCzVxOe69e-lFk99lV9MC_DzA4LwKDdR0vb-Ye0jOQk1k1ozVWOamiqR_pAk0CouLfyX68Nr4_qFR-TTJGkjJalcKKDQXU788eejqP0K-8yOMPX4/s1600/DSCN7501.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg9XuvL7uuByJKZKQyaGClNWYmXoaSOCzVxOe69e-lFk99lV9MC_DzA4LwKDdR0vb-Ye0jOQk1k1ozVWOamiqR_pAk0CouLfyX68Nr4_qFR-TTJGkjJalcKKDQXU788eejqP0K-8yOMPX4/s320/DSCN7501.JPG" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipQCpapPGNbhjDa1DdK3XAkDf9MEkh_1MffPDRbaN5oOQ9-Hf88WVoHwuybR7DiXJ82QcbbuGlwuJUQH-5o4EGzkGbRFDYBBlJLvblPMDU-fjPXdSmKroeuOoyB2cns_brM0aZtLBckLM/s1600/DSCN7509.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipQCpapPGNbhjDa1DdK3XAkDf9MEkh_1MffPDRbaN5oOQ9-Hf88WVoHwuybR7DiXJ82QcbbuGlwuJUQH-5o4EGzkGbRFDYBBlJLvblPMDU-fjPXdSmKroeuOoyB2cns_brM0aZtLBckLM/s320/DSCN7509.JPG" width="320" /></a></div> See the tongue sticking out on Evan. This is his new thing. The therapists told me months ago, back when Cameron was doing this too, that this is a good sign of a food tolerance development coming. Evan has his tongue out all the time, especially when he's focusing really diligently on something. I love it.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgc3KdO1mOtXzfEy8x75gxJtxcAI0E3etal2JAy44S3siL874Nw-pnE-5wNFELOE8qTzwnwogsNVE4Caf8q2OJS8E3bWSS9O_qvzEsa3atCN6sW3psWSCoScO7NA-Ip3mH7_bM5VKf-djM/s1600/DSCN7521.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgc3KdO1mOtXzfEy8x75gxJtxcAI0E3etal2JAy44S3siL874Nw-pnE-5wNFELOE8qTzwnwogsNVE4Caf8q2OJS8E3bWSS9O_qvzEsa3atCN6sW3psWSCoScO7NA-Ip3mH7_bM5VKf-djM/s320/DSCN7521.JPG" width="320" /></a></div> By the way, this toy is a toddler magic wand. It lights up and spins and vibrates and plays music all at the touch of one button. <br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNBsToLoSP-wXJv4LtVDDoxfDBqu2TlgE2lcudJV30J2xHqpiWMc8w-k_26dfCLEKcOlColbXYpOzAoXjXScDaeuACzY_HFb9l89qb3JQsjrJGjJPVUBF12mJdhBoPxE2_dPZZc14UyGE/s1600/DSCN7525.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNBsToLoSP-wXJv4LtVDDoxfDBqu2TlgE2lcudJV30J2xHqpiWMc8w-k_26dfCLEKcOlColbXYpOzAoXjXScDaeuACzY_HFb9l89qb3JQsjrJGjJPVUBF12mJdhBoPxE2_dPZZc14UyGE/s320/DSCN7525.JPG" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBHwmHxLstAA4r1bx7o0nRoJOCYOwPXMkX5CVlLi7TF-MpyKDqVu6fSjGMtKKFHjfoeUHfPMTxQzpv3ON_A_g2q-iomI4twKWXFaNx2I8Y8MlkefE-s7QuX8AWx8cxqJI6Ces1iDLwYk4/s1600/DSCN7526.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBHwmHxLstAA4r1bx7o0nRoJOCYOwPXMkX5CVlLi7TF-MpyKDqVu6fSjGMtKKFHjfoeUHfPMTxQzpv3ON_A_g2q-iomI4twKWXFaNx2I8Y8MlkefE-s7QuX8AWx8cxqJI6Ces1iDLwYk4/s320/DSCN7526.JPG" width="320" /></a></div> It is also the perfect $9 toddler weapon. We convinced the boys to put them back.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggtsWDQ3DIV5_Wlym_g97cO6c2kLztvSBg771SEZI3-IXltk34a93ONvDHNnP3-m_atZBriykLzp0dw-3Z7_gD7jCO-QWEgbFlyNHboww6Q3IBAva1jFNieuxhfz8HdDyYPJTiYyO6zow/s1600/DSCN7519.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggtsWDQ3DIV5_Wlym_g97cO6c2kLztvSBg771SEZI3-IXltk34a93ONvDHNnP3-m_atZBriykLzp0dw-3Z7_gD7jCO-QWEgbFlyNHboww6Q3IBAva1jFNieuxhfz8HdDyYPJTiYyO6zow/s320/DSCN7519.JPG" width="320" /></a></div> Yay for a great visit with cousins Phillipe and Sasha! <br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjod0YqUQkfPJZRjwfqQ-od-zmEiRJpJSlQQwax-WregT1xGGdvGreNW1tXVrU2hc2Ka1FLsFer7bcH7xHxRsrK6ADCZuDF3p6tZRUybZ-tRL1EMiGWuq5LrlK2MCXaRSz_UMk2_zUahJM/s1600/DSCN7533.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjod0YqUQkfPJZRjwfqQ-od-zmEiRJpJSlQQwax-WregT1xGGdvGreNW1tXVrU2hc2Ka1FLsFer7bcH7xHxRsrK6ADCZuDF3p6tZRUybZ-tRL1EMiGWuq5LrlK2MCXaRSz_UMk2_zUahJM/s320/DSCN7533.JPG" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg0nWgs8gefue3S05pP3K9CJcmRpvrhUWx4SfZJAiNdmtXxKLQvqNjYZr3FwYJvVv1F07bjddQWYfzqvf8VKXeU8J1A_KvUnthxnb1qukU1EoLgqrOLDQ3t57C3OhnZ13RSaqmj6rFayvA/s1600/DSCN7534.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg0nWgs8gefue3S05pP3K9CJcmRpvrhUWx4SfZJAiNdmtXxKLQvqNjYZr3FwYJvVv1F07bjddQWYfzqvf8VKXeU8J1A_KvUnthxnb1qukU1EoLgqrOLDQ3t57C3OhnZ13RSaqmj6rFayvA/s320/DSCN7534.JPG" width="240" /></a></div> These are the faces of "get me out of this thing NOW".<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDG5uZ7u803bTM8WbAvzEFOhSbsU3zndk-Zzk-03IO-RLbp6y4ZkOvsB61ED5kPA05PVn8Kvv5p7qdFXUmSVRS35MApbfSslCmvnIpqBhiaJk8rv5PrGq-5yOr5TGhm3NYLj9Yxfde9dA/s1600/DSCN7542.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDG5uZ7u803bTM8WbAvzEFOhSbsU3zndk-Zzk-03IO-RLbp6y4ZkOvsB61ED5kPA05PVn8Kvv5p7qdFXUmSVRS35MApbfSslCmvnIpqBhiaJk8rv5PrGq-5yOr5TGhm3NYLj9Yxfde9dA/s320/DSCN7542.JPG" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgPtpmv6UneSC1z5R1Do0x9EZNfMWudY8snbNCl_LXFCL6axoUSpSn1N2lpsCW01yomtgmHNUyo3dwytSaMkxJkTh4_yY4Scu7Rz7jEoWRStHpSgstjErV4dJrqhxqdseewBifFYC6o0U4/s1600/DSCN7547.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgPtpmv6UneSC1z5R1Do0x9EZNfMWudY8snbNCl_LXFCL6axoUSpSn1N2lpsCW01yomtgmHNUyo3dwytSaMkxJkTh4_yY4Scu7Rz7jEoWRStHpSgstjErV4dJrqhxqdseewBifFYC6o0U4/s320/DSCN7547.JPG" width="320" /></a></div> I love Homestead Gardens so much.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgMBOXwtLR7cWVJeAfRwMMy2jlzSnQjNbeF51nYKdezMshaE1XCnVkUBzQOd_S8JL5CwSD2ild8gy0FOmg7AoR6WBzflVFKHYjg1kBIboMJBrVLu8rGJcQ_DNivW5MyRyUMeJc-ykUqTWU/s1600/DSCN7549.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgMBOXwtLR7cWVJeAfRwMMy2jlzSnQjNbeF51nYKdezMshaE1XCnVkUBzQOd_S8JL5CwSD2ild8gy0FOmg7AoR6WBzflVFKHYjg1kBIboMJBrVLu8rGJcQ_DNivW5MyRyUMeJc-ykUqTWU/s320/DSCN7549.JPG" width="240" /></a></div> Evan has keen eyes and often randomly shouts "A clue! A clue!" Then runs to peer closely at what he thinks is the next clue to Blue's mystery. <br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgs7zjHeeDlbivCUCS07pAdpiiKhWBJdyttNB_QGzjt8CEX5sExQeITJz8eAN78ZT_51UEd8Kr3tRasb0NAs-ePPcyYIPIvXpRFk_TbekVm2oEzCCKpmBT7hBy1YDRIFAeyk3Pvomy84yA/s1600/DSCN7571.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgs7zjHeeDlbivCUCS07pAdpiiKhWBJdyttNB_QGzjt8CEX5sExQeITJz8eAN78ZT_51UEd8Kr3tRasb0NAs-ePPcyYIPIvXpRFk_TbekVm2oEzCCKpmBT7hBy1YDRIFAeyk3Pvomy84yA/s320/DSCN7571.JPG" width="240" /></a></div><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7yQdiNX378qLWdhD8mhseHlBSgNrzxmWRv1I1gQXOz7-BHqyspIK6bgYPJh2b4oa7OZk7-x-DPo8VWqYQp7XHszsgDSUOgB-o_fqDCfrCnasRdLFixSEsbImWQ4vVu1bTCOf5ixtXE3g/s1600/DSCN7578.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7yQdiNX378qLWdhD8mhseHlBSgNrzxmWRv1I1gQXOz7-BHqyspIK6bgYPJh2b4oa7OZk7-x-DPo8VWqYQp7XHszsgDSUOgB-o_fqDCfrCnasRdLFixSEsbImWQ4vVu1bTCOf5ixtXE3g/s320/DSCN7578.JPG" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTga7znj0b31Uv2Y8YVp-rxpd8-Z41kyHFDWCXKn0jhVaHGWhYVnACeMOiSsneBZi0M85BbImOrwECkyr4iv7IWWIVVP0l1GoBILkLY0-IZleaRVA2NLil-oWkE5aFSu8V_yDRCt8CqyQ/s1600/DSCN7597.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTga7znj0b31Uv2Y8YVp-rxpd8-Z41kyHFDWCXKn0jhVaHGWhYVnACeMOiSsneBZi0M85BbImOrwECkyr4iv7IWWIVVP0l1GoBILkLY0-IZleaRVA2NLil-oWkE5aFSu8V_yDRCt8CqyQ/s320/DSCN7597.JPG" width="320" /></a></div>Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com3tag:blogger.com,1999:blog-1842616166354863334.post-40352617292133651542010-11-10T21:33:00.000-05:002010-11-10T21:33:38.502-05:00Another Hollow Leg DayI can not believe this is happening. It's like a dream come true. I have to pinch myself. <br />
<br />
Today Cameron has consumed the following food items by mouth:<br />
<br />
9.5oz of whole milk<br />
4+oz of juice<br />
1oz of water<br />
2 inches of buttered toast<br />
1 jar of puree (at 180cal for 4oz) for breakfast<br />
1 jar of puree (80 cal for 4oz) for lunch<br />
1 jar of puree (120 cal for 4oz) for dinner<br />
4 yogurt melts<br />
6 goldfish<br />
2 small skinny pretzel sticks<br />
4 BBQ flavored potato chips<br />
almost 1/4 of a grilled cheese sandwich<br />
about 1/4 cup of buttered noodles with swiss cheese<br />
<br />
Can you believe this?? And he's not even on any Periactin this week!! My heart is racing. I was stunned that he was at all interested in my grilled cheese sandwich, never mind that he would over the course of 45minutes nibble nearly 1/4 of it happily. <br />
<br />
And Evan is eating better each day, just a little more volume in his liquids and purees. He's actively showing off his interest in taking new foods, tasting them (he loved to lick the grilled cheese, I used extra butter), and now he's making a point of showing me he can touch his top teeth to food. He won't touch his bottom teeth, but that's okay for now. I'll take it, because touching food to his teeth has taking 9 long months to convince him to try doing. <br />
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The boys are super cuddly and I am getting lots of spontaneous hugs and kisses and "I wuv youuuuu Mommy" throughout the day.Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com1tag:blogger.com,1999:blog-1842616166354863334.post-16180471764998820892010-11-09T21:55:00.000-05:002010-11-09T21:55:36.756-05:00Chew Baby Chew<div style="font-family: inherit;"><span style="font-size: small;">Today I gave the feeding clinic therapist raisins to try with Cameron. He loves them. He hates to touch them, but within 5 minutes of work he was shoving two raisins and a whole goldfish in his mouth at the same time. His current challenges are touching sticky foods, chewing food, then knowing when he's chewed it enough that it's time to swallow. Raisins are perfect, and they are fruit which he does not like outside of a puree form, and should help with the constipation issues he's having recently. </span>It's really funny to watch him eat them too. He will take the first raisin in a pincher grasp and eat it no problem. But then the next one he starts to use the pincher grasp, balks at it looking at his fingers in disgust, then uses both hands with the palms facing upward and pinches the raisin between the outside of his hands on the pinkie finger side and sort of tosses/tongues it into his mouth. Then the next raisin he uses the pincher grasp. Then the next he uses the funny hand thing again. The therapist was really impressed, said it shows he now finds some aspects of eating pleasurable enough to find away to overcome his sensory issues to eat food. My Big Boy is growing up!!</div><span style="font-family: inherit; font-size: small;"></span><span style="font-size: x-small;"><br />
</span>Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com0tag:blogger.com,1999:blog-1842616166354863334.post-57142523292105785372010-11-06T21:54:00.000-04:002010-11-06T21:54:36.982-04:00Sleep CameronTonight we visited with Mom-mom and Pop-pop and all our cousins, Tim, Lucy, and baby Dillan, were there for the first time under one roof. Made the grandparents giddy with joy at the utter chaos. We had a great time and the boys were just happy as can be. Cameron ate about two inches of cheese pizza, three cheese puffs (13 calories per puff), and 3ounces of a stage 3 puree, and only maybe 4oz of juice. Evan sucked on a piece of pepperoni like it was pure ecstasy, letting it hang out of his mouth and putting his hands up as if to say "Look Ma! No hands!" He also gummed and licked a piece of pizza until it was soggy pulp, then ate 4ounces of his favorite stage 2 puree (which happens to be 110calories for 4oz) and drank about 5oz of juice. The cousins played and played and then it was time to go home. Then on the way home the boys fell asleep. <br />
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Usually when we have to move Cameron from his car seat he gets hell-a mad and pitches a complete fit until we put him in his crib, but for the first time ever he didn't even bother to bat an eyelash. Instead, when I laid him down in his crib to hook him up to his feeding pump he lifted up his shirt, scratched his belly with both hands yawning and smacking his lips, then rolled over and said, "Cahmon sweeping." and pretended to snore loudly a couple of times before actually going back to a peaceful sleep. So stinking cute. Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com1tag:blogger.com,1999:blog-1842616166354863334.post-73005686720126225162010-11-05T14:05:00.000-04:002010-11-05T14:05:25.116-04:00AdjustmentThis new feeding tube regimen is taking some getting used to for both me and the boys. They both notice that I'm not connecting them to a feeding tube at nap time and ask me "Mommy, plug you in?" and lift up their shirts. But then they are so tired from the Periactin that when I cover them with the blanket they're asleep that fast. And they are more cranky and whiny and super temperamental because they are much hungrier.<br />
<br />
For me it's quite an adjustment because my days have to be so regimented about being prepared with their pumps. I have a routine in the morning for cleaning and prepping their feeding pumps that I no longer have to do until just before bed time. I feel at a loss, like something is missing. It's like finding yourself at some random point in the day standing in front of the open refrigerator door wondering what you're looking for and why you're standing there for so long. <br />
<br />
I did have huge panic attacks yesterday because the boys ate and drank so poorly, but then in hind sight, it wasn't that they ate poorly, they just didn't eat more than they usually consume to make up for the calories and fluids they are now not getting in the pump. It's okay, it's just one day, the first day of this new routine. They are eating slightly better today, if not behaving more abominably because of their hunger and fatigue. I just have to remember what my friends Trish and Becky have experienced with their own tube weening kids, keep it in my head like a mantra. Today will be a great day, tomorrow and the next day and maybe two more days it will be really horrible, then suddenly it's another glorious hollow leg day where they eat all the missed calories in one meal. It's going to take time to come to terms with what other moms of Failure to Thrive kids who don't have feeding tubes deal with every day. At least I have the tubes to fall back on, they are a safety net for which we struggled and stressed and researched our butts off, and fought with doctors over time and again. I don't regret the tubes, I don't believe that the boys would have survived without them. But my heart aches for my friends who don't have that safety net, one no one wants and should do everything to avoid. But damn it's nice to know that it's there.<br />
<br />
We have been putting the boys to bed 15 minutes later each night this week in hopes that we will have a smoother transition for Daylight Savings Time this weekend. I think it's finally paying off because instead of both boys waking at 6am, Evan woke at 5:30am (nightmares? hunger?) and once we soothed him he slept until 9am!! Cameron slept until 7:45am. As for eating, it's far easier to feed these guys on a one on one basis, but rarely ever possible. Today we did and it was great. At lunch we took the boys to visit a new (to us) grocery store, Wegman's, and I brought home a hot lunch for myself. Cameron took one look at it and demanded some of my chicken. Only it wasn't my chicken he wanted, since when I offered it to him he shoved it out of his way. I pointed to my fairly peppery Egg, Cheese and Artichoke fritatta and he went crazy. I gave him a little and he wolfed it down demanding more. He ate half of it (I pulled out the big chunks of artichoke that I know he would have trouble with) and was shocked that he loved it, rolling his eyes like it was ecstasy not caring that it was peppery at all. I offered it to Evan, who took a bite and pushed it out with his tongue, but he didn't react negatively. He just didn't know how to eat it because it wasn't puree and it wasn't a solid, so he ejected it. I will be going back to Wegman's to get more and the recipe to make it at home this afternoon. Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com1tag:blogger.com,1999:blog-1842616166354863334.post-18718596430959026512010-11-03T21:09:00.001-04:002010-11-03T21:14:30.265-04:00Happy Halloween TreatsI'm so emotionally drained and physically exhausted (from a bad night's sleep) right now so my hands are shaking and I'm feeling faklemped from the unexpected news we got at the GI's appointment today. I have been trying to do an update on how the boys are doing with the new medicine Periactin and really should have posted last night. So I'll start with that info and then tell you why I'm in a tizzy of emotion from the doctor's visit.<br />
<br />
The week that we started the boys on the Periactin was only rough that first day. The medicine really did what we had hoped it would do, make them feel starving hungry. That is until they got Hand, Foot and Mouth (I'll call it HFM), which is a common and highly contagious and miserable virus. It caused lots of bad mouth sores so obviously we discontinued giving the Periactin until they were better. Thankfully the Periactin did the trick following the recovery from HFM because I am certain without this medicine they would have taking a good month to get back on track with their eating since the mouth sores were so painful. Within two weeks we're back to where we were consistently drinking 4+ ounces of liquids each meal and eating 4+ ounces of stage 2 and stage 3 purees, and Cameron is back to eating solids throughout the day (about 5 to 10 Gerber dried apple cubes, 6 to 8 goldfish crackers, 4 to 6 cheese puff curls at 13calories each, 1 to 3 Ritz Bitz cheese crackers at 11calories a pop - all in one day). Evan can not tolerate texture at all, but he lets me brush his teeth and tongue without too much fuss, and will happily suck on a cracker or cheese puff or piece of dried apple, he just will NOT let any food touch his teeth.<br />
<br />
Then the boys caught head colds which made tasting foods tough but, again because of the Periactin we muscled through it. And the nice side effect of Periactin is that it is really first and foremost an antihistamine so it dries up their post nasal drip quite nicely so that we didn't have the typical amounts of gag reflex vomiting that we're so used to. The fluid intake is still low ever since getting the HFM illness, but it's creeping back up so I'm not as worried as I was a few days ago when it looked like things might get ugly. <br />
<br />
<br />
In fact, Cameron hasn't had a reflux/GERD related vomit in about three and a half weeks. He has had one or two gag reflex vomits because of feeding therapy or behavioral vomiting from getting upset and crying too hard, but I don't actually count those since they are not directly related to reflux. And Evan has been trending very nicely with only one vomit about every five to seven days, usually on a Sunday or Monday night.<br />
<br />
<br />
As for the toddler hell that we experienced with our first dose of Periactin, well that is ever looming over my head when I make the decision each morning about whether or not to give the boys their morning dose. Per doctor's orders, I have the flexibility to give up to 5mls in the morning or cut out the morning dosage all together and just give them the evening dosage. I am playing around with the timing of administering the medicine to them and the amount given to find the right balance. If I give them too much too early they conk out around 10:30am which is right in the middle of all our therapies and fun activities every day. And if they sleep that early it's usually a power nap of about 20 minutes and then they are up the rest of the day. And it's far worse when one is up and the other is asleep, only to swap rolls after three hours. Mommy needs her nap time. In the evening I give them the full dose about an hour before dinner so that we maximize the hunger drive because I do see that they are most hungry and consume the most liquids and solids when given the full dose, and get the added bonus of a very easy bed time and a full night's sleep.<br />
<br />
On the sleep front Periactin has been very good for us in helping to regulate their sleep. We have been on a very excellent sleep pattern for about a year now, but I have to be very strict about it or we pay the price for several days and see an increase in reflux attacks when the boys don't get enough sleep on a regular routine.<br />
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So what has me all giddy and emotional today? Today we went back to the GI for a follow up to starting the Periactin so that we could see if there was any impact on their weight gain to warrant further use of the Periactin, and maybe to ween off more formula through the feeding pump. The more they eat by mouth, the more time off the feeding pumps. The more time off feeding pumps (which is always during a sleeping period like naps or at night) the less chance of strangulation by feeding tube in their sleep which = mommy can relax and re-sleep train herself back to a relatively normal person.<br />
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And what happened at the appointment hit me like a ton of bricks. I did NOT expect this at all. In three weeks, after having been sick with HFM and then a cold after that, Cameron is actually bumped his weight to height ratio back into the 95% and is considered on the cusp of being considered borderline obese. Yep! That's right, you did not read that wrong. My GI and her Nutritionist were giddy with excitement when they met with me to discuss how things have been going. They said because Cameron is being more willing and adventurous with the solid foods and consuming more volume despite being sick, he's exceeding our goal of 4 to 10grams a month. He gained 27grams this month!!!!! What we are doing seems to be working, and if we continue without making changes to his formula intake he will be on the charts as obese within a month. To counteract this trend and to maintain his perfect toddler physique we need to drastically cut back on the amount of high calorie formula he's getting through his feeding pump.<br />
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(I'm tearing up now, bear with me as I type blindly.)<br />
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We've been giving Cameron 500mls (that's a little more than 17oz) per day, split in two feedings; one at nap time for 200mls and then the bedtime bolus of 300mls. We are going to cut out the nap time bolus completely and only give him 150mls (that's only 5oz) at bedtime. (Okay, I lied, I'm sobbing now.) He will literally be connected to a feeding pump for all of one hour per day. Once upon a time the boys were connected to feeding pumps 24hours a day.<br />
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Evan is doing extremely well too and I'm so excited that the recent illnesses haven't set us further back and that he's showing great interest in trying to sample food from my plate. He gained 10grams, right on target. And he would likely be doing the same as Cameron if he would only just trust that it's okay to bite and chew food and move it around on his tongue. He puts food in his mouth, rolls it around a little before spitting it out. If the food gets too far back in his mouth he panics and gags and vomits it out or swallows it in an unpleasant fashion. The GI and Nutritionist were thrilled that he's doing so well considering he's so sensory adverse and that HFM really hit him hard. Since he's right on track, if this pattern keeps up and he doesn't get set back by another illness he too will be headed to that beautiful growth chart mark I like to think of as "Little Fatty". Since we want to maintain his beautiful physique as well as challenge him to feel a little more hunger so that it will hopefully make him take the plunge into biting and chewing we are also going to cut back on his formula intake.<br />
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Evan has also been getting 500mls (about almost 17oz) of formula through his feeding tube during sleep times just like Cameron. He gets 200mls at nap time, and 300mls at night. Now we will be dropping the nap time bolus completely and he will only be getting 300mls at night over the course of 3 hours. (I think I might have a mental breakdown now.)<br />
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So now our plans are heading full steam ahead to get the boys off their feeding tubes completely. We have still many months to go, lots of goals to achieve before this is possible. But our GI and I are sure that Cameron is fast tracking it and will be completely formula free in about a month. Then we will start weening him off his reflux medicines and eventually the Periactin, so that Cameron will be completely medicine free for the first time in his entire life. Evan will take longer, but then he's always been our Lotto baby and surprises us with amazing ways. I know not to underestimate my little dragon Evan. He's a feisty kid and both the GI and I feel that he's ready to take on the eating challenge and we expect that he will be formula free by the first of the New Year 2011. Their feeding tubes will not come out for at least 3 to 6 months after they are formula and medicine weened (I am going to fight with our regular GI to follow our feeding clinic's tube removal protocols rather than her more aggressive approach), which would make this one of the BEST birthday presents that the boys and I could ever have.<br />
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I think I need to go lay down now. Here's some pictures from the last couple of very busy weeks. <br />
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Chillin' at Clark's Farm with our buddy Brendan. It was a cold and windy day!<br />
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We had a great time at Uncle Chris's house with our cousins Timmy and Lucy. They had a bonfire, pumpkin carving, and our favorite thing - a hay ride!! Cameron was in love with Uncle Chris and his orange tractor, while Evan was giddy to be ridding around in the hay howling at the moon with our buddies Julian and Teirnan and their parents Ray and Jenny. Such a fun night.<br />
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And then fall happened and the boys were reintroduced to leaves. And it was good.<br />
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Had a blast at ZooBoo and really loving our zoo membership. We'll definitely be renewing that membership every year. Thanks again to Ray and Jenny for that, we really are loving the zoo!! <br />
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Thanks again and again to Auntie Te and Uncle Tim for our flash cards. Evan is a teensy weensy bit obsessed with them to the point of risking life and limb climbing on top of the back of our "Thinking Chair" to reach them at the crack of dawn every. single. day. <br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4a45CqOwMBsPw7l9gRgPpHgIcGeaBXNst6yxUXSFiLQtjtdhZEgmMudwYpCuX6QcfLPD0YCPUSsJMETC3bm8PAeChZH85hBanT2W8TSLrTSh9E_Hw6Q8uOVJHzqdV14syAh25X8PafTeS/s1600/DSCN0249.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4a45CqOwMBsPw7l9gRgPpHgIcGeaBXNst6yxUXSFiLQtjtdhZEgmMudwYpCuX6QcfLPD0YCPUSsJMETC3bm8PAeChZH85hBanT2W8TSLrTSh9E_Hw6Q8uOVJHzqdV14syAh25X8PafTeS/s320/DSCN0249.JPG" width="320" /></a></div>Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com9tag:blogger.com,1999:blog-1842616166354863334.post-29440243654481589342010-10-21T09:18:00.000-04:002010-10-21T09:18:26.533-04:00A Moment of Silence for Christophe HissetteMy cousin Christophe was a kick ass racer. I am so proud of him. I love him and miss him and think of him all the time.<br />
<br />
<a href="http://www.dubaiautodrome.com/tracktalk/2010/10/christophe-hissette-to-be-honoured-at-kartdrome-24-hours/">http://www.dubaiautodrome.com/tracktalk/2010/10/christophe-hissette-to-be-honoured-at-kartdrome-24-hours/</a>Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com0tag:blogger.com,1999:blog-1842616166354863334.post-4419138342162042932010-10-19T22:29:00.000-04:002010-10-19T22:29:19.091-04:00A Hollow Leg Day<b>Cameron:</b><br />
Breakfast - <br />
5oz of whole milk<br />
4oz of yogurt<br />
<br />
Morning Snack - <br />
6 goldfish crackers<br />
4oz of juice (watered down)<br />
<br />
Lunch -<br />
6oz of juice (watered down)<br />
3 cheese puff curls (13 calories each!!)<br />
3 pretzel sticks<br />
4oz of stage 2 puree<br />
<br />
Afternoon Snack -<br />
2oz of water<br />
4 pretzel sticks<br />
<br />
Dinner -<br />
5oz of whole milk<br />
4oz of stage 2 puree<br />
Self-fed 1 1/2 table spoon of diced macaroni & cheese (solid just like Mommy eats)<br />
Self-fed 1 teaspoon of carrots steamed in beef stew<br />
<br />
<b>Evan:</b><br />
Breakfast - <br />
<br />
5oz of whole milk<br />
3oz of yogurt<br />
<br />
Morning Snack - <br />
<br />
2oz of juice (watered down)<br />
<br />
<br />
Lunch -<br />
6+oz of juice (watered down)<br />
licked 1 cheese puff curls to a soggy pulp<br />
3oz of stage 2 puree<br />
<br />
Afternoon Snack -<br />
2oz of water<br />
<br />
<br />
<br />
Dinner -<br />
5oz of whole milk<br />
2.5oz of stage 2 puree<br />
Self-fed and spit out several pieces of solid diced macaroni & cheese without freaking out <br />
<br />
Not too shabby. Why is this so remarkable? Because all of the afternoon food was consumed in under 30minutes and was feed to the boys by their therapists with no involvement from me or Granny Cathy. For the first time ever the boys HAPPILY let someone other than us and the feeding clinic staff feed them and consumed their full meal plus extra all on their own direction. As my good friends Trish & Becky would say, it's been kind of a hollow leg day.Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com5tag:blogger.com,1999:blog-1842616166354863334.post-5960888115630220282010-10-17T21:53:00.000-04:002010-10-17T21:53:59.514-04:00Can there be a snowball effect without snow?At my last post I was talking about what a nightmare the first dose of Periactin was. Well... heh, heh, heh... Yeah, that was just the tip of the iceberg.<br />
<br />
So the next day, Thursday, the boys ate considerably more food that usual and they were slightly better behaved but very tired. Then that night immediately after bathtime Evan threw up twice on an empty stomach with no warning and not caused by any gag trigger and spiked a fever of 102. He threw up all night long and then was lethargic all Friday. By Saturday we went into the pediatrician because we found white sores on the inside of his bottom lip. Turns out they were on the back of his throat too and that it was a virus likely similar to that of Hand Food and Mouth. The pediatrician said that if Cameron was not exhibiting signs then he should be okay to continue his normal activities which was great. Cameron, meanwhile, had been eating more and more and more food. He wasn't able to go more than an hour or two without asking for food and telling me he was hungry or thirsty. Sunday night Cameron ate almost a half of a hot dog, 12 goldfish crackers, and 3oz of a lumpy stage 3 puree, but he spiked a fever at dinner and we knew that he'd had it too. Vomit everywhere, all night long, and obviously we had to discontinue giving the Periactin because the sores in their mouths hurt so badly they wouldn't even drink more than a sip of water. And then by Monday my husband had it too. Everyone seems to have recovered for the most part by this weekend but we're all still quite tired. <br />
<br />
We started back up on the Periactin and the toddler tantrum that came with our first dose the week before happened again, but now I was prepared for it. The volume and desire to eat is not what it could be because they are still getting back in the grove but by tonight they are eating better, just not fantastic. Oh, and Evan stopped vomiting on Tuesday, Cameron stopped vomiting on Wednesday, but our five day streak of no vomit ended tonight with a puke at dinner and then again during the evening bolus from Evan. *sigh* It was soooo very nice while it lasted.<br />
<br />
To try and shake the blues we had from this illness we decided to visit Homestead Gardens for their fall festival. It was great because it's so beautiful there and there's lots to see and do, and we got there early enough that there was almost no customers yet. The trip was cut very abruptly when Evan tripped stepping up onto a platform to play with one of those coin operated toddler amusement rides, you know, the kind just like outside the grocery store that they sit in and you put in a quarter and the thing rocks and makes car or choo-choo noises. He tripped forward and smacked his forehead right on a corner of the base of one of the rides. His head started gushing lots of blood from the half inch slice. We left and took him to urgent care because it was clear that the gushing vertical slit was not going to stay closed enough to heal on its own without sutures. My poor brave boy ended up with two stitches (actually the nurse put in three but had to take one out) and some surgical glue to keep it shut tight. He was very brave and was acting just fine while we waited for the trauma nurses to get around to treating his cut, but was obviously hysterically upset when they did the sutures. Now everyone will be able to tell the boys apart for the rest of their lives.<br />
<br />
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We love wearing our sunglasses now. All the cool kids do it! <br />
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I think the stitches coordinate with the hockey shirt, don't you??<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiLGOSZlQ_oxuvmcKoSUvAoqNrrEH3irVJcJ5DZ6EoI4wnRDrOsmRGI927ECXK0oXgBm2i9vdKKNxfDPvQR1RESNs1JJpGPyqf7lz817VaL2FtSkFG3Og0XXv_Tl_CRtuvS47G2oY2EdoQ/s1600/DSCN9706.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiLGOSZlQ_oxuvmcKoSUvAoqNrrEH3irVJcJ5DZ6EoI4wnRDrOsmRGI927ECXK0oXgBm2i9vdKKNxfDPvQR1RESNs1JJpGPyqf7lz817VaL2FtSkFG3Og0XXv_Tl_CRtuvS47G2oY2EdoQ/s320/DSCN9706.JPG" width="320" /></a></div>Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com3tag:blogger.com,1999:blog-1842616166354863334.post-66344895652463643922010-10-06T14:01:00.000-04:002010-10-06T14:01:52.095-04:001st Dose of Periactin = Toddler HellGreat night last night, no puke and no one woke up in the middle of the night. This morning the boys slept in until 7am (angels singing from the heavens) and were in fantastic moods. That is until I gave the boys the first dose of their Periactin. Holy hell was that a miserable morning. It took about an hour before the full effect of the medication presented itself. I was expecting sleepy kiddos, maybe a little cranky and whiney, even clingy. Hopefully a little hungry too. What we got were two tornadoes of misery and angst. Nothing made them happy, they trashed the playroom. They were much, MUCH more agressive with each other, became hysterical if one was being held but no the other. Refused to share my lap (not unusual) but instead of the usual protest and dirty looks at me there were complete meltdowns and fighting. And they pushed and shoved each other, something they never do, and threw things across the room with anger and all around threw the most humongous joint temper tantrum I have ever seen. <br />
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I bailed on the idea of going to story time because it was clear that this would be a huge mistake. So my mother and I decided we'd talk a walk around the neighborhood with the boys in their wagon. Cameron threw a furious fit because I put Evan's shoes on first, while Evan was furious that I put shoes on him at all. And once I had Cameron in my lap to put his shoes on he became a madman because I was putting the right shoe on the right foot, and he wanted the left shoe on the right foot. The whole 20 minute ride/walk around the neighborhood was completed with sullen and sour faced toddlers sitting in stony silence the whole time, you'd swear they'd just had a screaming match but were now refusing to talk to each other or me or their Granny.<br />
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They did NOT eat well at all during breakfast and lunch. They are NOT drinking fluids well either. Now they are napping but Cameron keeps waking up at the slightest noise and screams bloody murder for a few minutes until he finally settles down and goes back to sleep. It's been a very ugly day. I think tomorrow I will cut the dose in half before giving it to them. Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com0tag:blogger.com,1999:blog-1842616166354863334.post-48823833081107485282010-10-05T20:44:00.000-04:002010-10-05T20:44:36.190-04:00Evan & the Sit n' Spin<object style="background-image: url("http://i1.ytimg.com/vi/Lpayv7ha3R8/hqdefault.jpg");" width="425" height="344"><param name="movie" value="http://www.youtube.com/v/Lpayv7ha3R8?fs=1&hl=en_US"><param name="allowFullScreen" value="true"><param name="allowscriptaccess" value="always"><embed src="http://www.youtube.com/v/Lpayv7ha3R8?fs=1&hl=en_US" allowscriptaccess="never" allowfullscreen="true" wmode="transparent" type="application/x-shockwave-flash" width="425" height="344"></embed></object>Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com0tag:blogger.com,1999:blog-1842616166354863334.post-82757115421554147272010-10-05T20:39:00.000-04:002010-10-05T20:39:33.797-04:00Cameron & the Sit n' Spin<object style="background-image: url("http://i2.ytimg.com/vi/Qj7_Zeb9J4E/hqdefault.jpg");" width="425" height="344"><param name="movie" value="http://www.youtube.com/v/Qj7_Zeb9J4E?fs=1&hl=en_US"><param name="allowFullScreen" value="true"><param name="allowscriptaccess" value="always"><embed src="http://www.youtube.com/v/Qj7_Zeb9J4E?fs=1&hl=en_US" allowscriptaccess="never" allowfullscreen="true" wmode="transparent" type="application/x-shockwave-flash" width="425" height="344"></embed></object>Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com0tag:blogger.com,1999:blog-1842616166354863334.post-5398494615237536682010-10-05T17:19:00.000-04:002010-10-05T17:19:33.150-04:00Periactin & the Sit n' SpinWe had yet another follow up with our regular GI (the one from U of MD and not affiliated with Mt. Washington Pediatric Hospital Feeding Day Program) today to make sure that our very slow weaning of formula is not impacting the boys negatively. We have been giving the boys only 500mls of formula per day, down from the approximately 700mls they used to get. The decrease in formula through the pump is in hopes that they will be hungrier and want to eat and drink more by mouth. This seems to have worked because up until a week and a half ago we saw some great consistency and improvement in the volume of foods and drinks they consumed by mouth. The boys were regularly consuming about 3 to 4 ounces of purees and 5oz of milk or juice or water per meal.<br />
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But then about a week and a half ago it all tanked back down to fighting to get two ounces of puree and three of milk each meal. They both started puking at night again, even puking three times in a row at the same time on Thursday night. Good times.<br />
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The GI was expecting at this appointment to see that the boys would have lost some weight in the last 4 weeks but they actually have gained a little bit with Evan weighing 26lbs and Cameron weighing 29lbs. This is good news because she feels that they boys need a little help with eating and we don't want to take away calories from their formula unless they're gaining tons of weight, which they are not. To do this she's prescribing a medicine called Periactin (also called Cyproheptadine in the generic form). Periactin is actually an antihistamine that when given in small doses has for our purposes a convenient side effect of causing hunger. So it is another drug like Erythromaicine which is an antibiotic the boys were on that given in small doses increases stomach motility/digestion, this Periactin makes you want to eat.<br />
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There are side effects to this medication, but nothing really scary. The most common problem with this medication is that over time the body begins to tolerate the small doses and suddenly without warning the medication stops having its desired effect. So for this reason we will start giving the medicine two times a day for 4 weeks and then stop giving it for one week. If this is too long a time frame and we see their appetite begin to wane again then another option is to give it five days a week (Mon - Fri) and none two days a week (Sat and Sun). Also, this medication is an anti-histamine so the next issue is that it makes you very sleepy. If this happens and it causes issues during the day/morning hours then we just drop the morning dosage or give it right before nap time (hallelujah!). This is a side effect that a very sleep deprived Mommy and Daddy will like. Lastly, and by far the most severe but also the most rare side effect, this medication has the tendency to decrease urine output. Luckily the solution is to stop giving the Periactin and the problem stops within 24hrs. <br />
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We'll be starting the Periactin tomorrow morning. I hope this is the trick to get us to the next stage of eating. I'm just as excited to try this medication if it means more uninterrupted sleep at night for all of us, as well as increased interest in eating by the boys. <br />
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If you or your little one has been on Periactin, what was your experience like? <br />
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Now some pictures for you to oooh and aaah over. ;-)<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjO2Xvs2JL6w4fdY65ixyiNzqUogxhhV0PEVKYy5Co1Geei1Ndt358twtkeubbyvhyphenhyphenM_iU0IpxE20R8i79xYsyJ20AcLK_baInPlv-2w_GNfEFN6xcg9eoD1aEuRlD_I9FAvdpcC7Khw4c/s1600/DSCN9057.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjO2Xvs2JL6w4fdY65ixyiNzqUogxhhV0PEVKYy5Co1Geei1Ndt358twtkeubbyvhyphenhyphenM_iU0IpxE20R8i79xYsyJ20AcLK_baInPlv-2w_GNfEFN6xcg9eoD1aEuRlD_I9FAvdpcC7Khw4c/s320/DSCN9057.JPG" width="320" /></a></div>Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com2tag:blogger.com,1999:blog-1842616166354863334.post-54703364989554455912010-10-05T14:33:00.000-04:002010-10-05T14:33:31.844-04:00Witnessed in the PlayroomAs witnessed by Granny Cathy today. <br />
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Cameron and Evan standing at the open playroom window looking out at the yard and drinking from sippy cups of water. Cameron looks at Evan's water and says "Share!". Evan hands over his cup of water and takes Cameron's cup. They continue to stand at the open window drinking their cups of water.<br />
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Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com1tag:blogger.com,1999:blog-1842616166354863334.post-1175093423494739572010-09-30T18:25:00.000-04:002010-09-30T18:25:27.116-04:00Relaxing 50 minutesI am sitting in the lobby of the veterinarian's office. I am with Chewie. Pleasant quiet music is playing. There is a tropical fish tank. The light is dimmed. We are waiting for his ear to be looked at. It's just me and my calm 110lb furry chicken. It is peaceful and relaxing here. I might spend the night. Chewie does not plan on joining me.Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com1tag:blogger.com,1999:blog-1842616166354863334.post-63682101496049537712010-09-28T22:54:00.000-04:002010-09-28T22:54:01.270-04:00I am not going to survive the Terrible 3's.Recently I've been noticing more resistance from Cameron when I want or need him to do things. It's usually over things like holding my hand when walking in the parking lot, or putting him in his high chair for meals, or for wanting something that is not safe or appropriate for him to have in his mischievous little hands. They are short little outbursts with lots of pulling or tugging or pushing by Cameron and a fair bit of maniacal giggling because he knows what he's doing is not right. But it's always quickly resolved or he's easily distracted by something and forgets what he was trying to accomplish. <br />
<br />
Tonight however was probably his very first full fledged tantrum. We were sitting in the kitchen, my husband and me sitting on opposite sides of the kitchen table with a boy in a high chair in front of us, trying to feed them dinner. Cameron had been sucking on a Pepperidge Farm Goldfish pretzel. He had been using the pretzel as a diversionary tactic to avoid taking the spoons of food that I was feeding him, a common trick the boys both use often. I took the pretzel away and put it on the table next to me. Instantly Cameron screamed "Want goldfish! My goldfish! More goldfish! No! No! No!" at the top of his lungs while kicking his chair and banging on the tray. <br />
<br />
Yes, I caved. Instantly. Like a house of cards in a strong breeze. I immediately handed back that goldfish. And he bit a piece off and chewed it up and swallowed. And then he did it again. Very tiny bites, chewed 36 times each before swallowing. Until that pretzel was gone. Luckily between every two bites he let me feed him a spoonful of his puree and he managed to eat all 3oz of it before our 30minutes was up. *sigh* <br />
<br />
It's not like that was the end of the world for me to let him just finish the pretzel, but if I let him just focus on the pretzel then it takes away from the very limited amount of time I have to keep him in the chair (no more than 30 to 40 minutes max) to get him to consume measurable sustainable calories including his milk. The whole meltdown only took maybe 6 seconds? With a lot of hands down holding and coercion and Blues Clues on the television it took all 30 minutes to eat one goldfish pretzel and 3 oz of puree.<br />
<br />
I could have just said "Take three bites and then you can have it back" as part of the reward for eating but I didn't. The thought didn't even cross my mind until the moment had already happened and I'd already caved and handed back the pretzel. Typing this now I'm thinking of a dozen ways to have changed the outcome of that scenario. I must really be off my game, but the new begging and whinging behavior, the suddenness of the outburst, the conviction, the screaming with near tears really caught me off guard.<br />
<br />
If that's a temper tantrum indicative of my future, and I'm guessing that was super mild, I am so, so, so very screwed. Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com1tag:blogger.com,1999:blog-1842616166354863334.post-72115326727149969362010-09-24T22:38:00.000-04:002010-09-24T22:38:59.978-04:00Guggling KareokeAt bedtime tonight we had some great entertainment to burn off the last minute pre-bedtime giggles. Drew was juggling bouncy balls which thrilled Evan. I'm quite sure that had he been wearing big boy undies instead of a diaper he would have peed himself silly while screaming "Guggling! Daddy Guggling!" Meanwhile Cameron would bring to me his Fisher Price radio,look at the buttons with a serious expression and say "Howbout...." (long pause) "Itsy Bitsy Spider song?! Here comes!" and then press the button to play the Itsy Bitsy Spider song. At this point he'd pick up a toy microphone and sing the song into it. We did all five songs on the radio this way, the whole family singing along while Daddy and Evan "guggled". So much fun.Laurahttp://www.blogger.com/profile/06785482241331351560noreply@blogger.com0